The disease is called Sickle Cell Anaemia. The sufferers are called ‘Sicklers’ and sadly so, the disease currently has no cure.
Born September 1st 1965 to a professor of medicine (father) and a trained nurse for a mother, Toyin’s educational journey thus began at the University of Lagos staff school; Our Lady of Apostles Secondary School and then unto The Lagos State University where she graduated with a degree in Economics in 1992.
Oluwatoyin, sickle cell warrior of over 50 years, admitted that sickle cell disease can be managed and avoided and that the crisis is better imagined than experienced for they are overwhelming and often times annoyingly disrupting lives of sufferers and that of their families.
With a mission to empower and improve lives that have been attacked and ravaged by sickle cell anaemia disorder – by educating, providing support and transforming them such that sufferers begin to live healthy, positive and interesting lives even amidst their challenges.
Author of the book ‘STILL STANDING’, the book tells of the writer’s struggle, physical, psychological and emotional pains she went through and how with courage and determination she was and has been able to beat all odds.
Throwing herself into several projects, like project STILL STANDING, TOUCH A CELL, CLUB STILL STANDING, Toyin, although small in stature, she has been able to showcase massive might by going all the way to transforming lives especially people living with the sickle cell disease, she is currently the Executive Director and founder of Sickle Cell Advocacy and Management Initiative (SAMI)
Health & Chronic illness coach, author and motivational speaker, Oluwatoyin, AKA – STILL STANDING is a woman that can vividly be described as the “small girl with a big God”. She enjoys reading, writing and listening to music.